Sunday, November 07, 2004

c'est novembre:........

A lot has changed in the last few weeks. For one I have begun my masterpiece, or rather my book. It may not be a masterpiece but it is my book. And, as I traverse the verbiage and experience of life necessary for the task, I find myself fluid with more than I knew I had. Well, life has changed in other ways as well. I have learned my mom doesn't have cancer but has some hurdles to overcome nonetheless. I have become more organized in continued partial preparation for a new combination of routine. Parttime sales with the library books. Parttime job at a bookstore that I may start next week, and due to narcolepsy, the drop of the scourge of cost of provigil. I have been approved for a full year of free provigil from NORD National Organization of Rare Diseases. Would have cost me 200.00 a month just for the med. at lowest dosage. And, If you include the fact that I already get neurontin free (would cost 900.00 per month) and the fact that I already spend 190.00 a month on medical expenses of 2 not covered medications and Dr visit and therapy plus the 75 to 100 a month I am sending out toward paying a 4350.00 Medical bill involved in the necessity of discovering the Narcolepsy in the first place, I got a major bit of medical expenses on a low income and no insurance. If the Narcolepsy isn't completely controlled by this drug ....if you count the fact that I am seizure prone and have to take narcotics for four broken vertebrae due to previous grand mal siezures...I could have to go on disability. So, I am carefully documenting things, as they stand, and as they go,... for the potential of having to provide medical proof of disability. I still can't seem to get my parents to photograph me when I am half hanging out of my chair asleep.... sometimes almost touching the carpet with my head. Why they won't I can't explain, but they remembered to photograph my asleep once in my chair not a very convincing photo since I was upright with no appearance of catalepsy (paralysis of musculature) during the episode. But progress is being made on the book. I have been able to purchase Dragonspeak software. That enables me to dictate much of my book as I think it. leaving brain power to think rather than type. And allows my mind to race... Also, the need for enunciation gives a very formal and proper literary note to the narration and seems to (oddly enough) help me chose vocabulary of more contextual dexterity and gravity. My Dad will drive in my forays into sales anywhere further than 20 miles from home. I think this arrangement is a questionable one; I am open minded. My computers have some help still to render. I need to get one on the net and the other back to wireless. I also believe to accomplish that I need to download all of my materials in the laptop onto the desktop to wipe it clean reformat it and run it clean. Any way I am also by way of other minutia for me to remember......I am giving some presents to the kids and Kevin Kristi and Jolie for the holidays as well as some photos and a video tape of his mother that he will cherish. closing for NOV. 7th Less writing here is more writing where it counts. Nobody reads me anyway.... not sad about it . Just have no reason to believe I am abandoning any readers ... certainly after the latest sabbatical of no posts to follow.

Bon Voyage,

DEADMAN !!

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